Hello everyone. I’ve been visiting the form recently looking for information following my recent experience with which began at the end of August 2025.
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TL;DR
Symptoms: Unilateral severe loss of hearing which happened instantly in the middle of the day, accompanying dizziness, positional vertigo, feeling of ear fullness. No signs of ear infection, no facial/nerve/single-sided weakness or numbness. Weber/Rinne test confirmed no conductive loss, sensorineural loss.
NHS Treatment as of 09/2025: 60mg (12 x 5mg once a day) Prednisilone for 7 days only with no taper.
Mostly I was looking at other peoples experiences to try and determine what I could expect in terms of treatment and what options there were. I wanted to briefly summarise what the UK NHS department explained to me was the current treatment protocol (at least at my hospital in the West Midlands) based on my symptoms as presented as of September 2025 in case it proves helpful to others as to what they maybe could expect as I had very little information at the time about what the plan was, or that there even was a plan beyond ‘here is a course of meds, take those’.
Each case and person is unique so this may not be your experience if you are unfortunate and experience this type of loss.
My symptoms were unilateral severe loss of hearing which happened instantly in the middle of the day, dizziness, positional vertigo, feeling of ear fullness. No signs of ear infection, no facial/nerve/single-sided weakness or numbness.
As of September 2025 so far as I understand it is for SSNHL the NHS will perform some basic tests to rule out infections and other causes and perhaps a hearing test with an Audiologist. If you get a sudden loss of hearing as others have stated elsewhere go straight to the hospital to A&E and get checked. I didn’t see an ENT via an appointment at my hospital until two and a half weeks after symptom onset (thinking initially it was just ear wax blockage), luckily I got to see my GP 5 days after onset and they performed a Weber/Rinne test (tuning fork) to determine if the loss was conductive or sensorineural and then spoke to the ENT team at my local hospital before my GP started the treatment regime with medication. In the interim I had no idea what I should expect and no-one to talk to in order to find out what the plan was so I felt a bit out there on my own.
I was prescribed 60mg (12 x 5mg once a day) Prednisilone for 7 days only with no taper following it. This glucocorticosteroid for this period and then perhaps a follow up audiology test was, so far as it was explained to me when I finally saw an ENT the current treatment plan for idiopathic SSNHL cases where there are no other symptoms and no contraindications for the use of steroids.
After that it is a case of ‘Watchful waiting’ which is where I am now. Hoping nothing further goes wrong to indicate something further is at play.
Of note I decided while on the steroids to see a private ENT as I could get an appointment before seeing an NHS ENT. The private consultant offered me an Intratympanic injection of steroid into the affected ear alongside the Prednisilone. Potential benefits as explained to me where the lack of side effects of the oral steroids and the possibility (not certainty) of (unproven) increased effectiveness by going straight into the area of inflammation. I did have the injection but just the one. Further injections were an option but the consultant wasn’t convinced further injections would provide much more benefit, in his opinion. I’m not sure if the injections would be available via the NHS in addition to or in place of the oral steroids (possibly in place of in the case of contraindications for the oral route).
No other treatment options were discussed by the NHS or private ENT (no mention of hyperbaric treatments etc).
I’m hoping if you come across this post and are in somewhat the same predicament I found myself in that this in some small way helps you in what you could potentially expect. I also hope it doesn’t add confusion.
One thing I will humbly advise if I may is to get the number for your local ENT department if possible and reach out to them with your questions, alternatively try your GP or NHS 111, and try and stop reading forum and reddit posts and endlessly searching the internet like I did. It probably won’t help, it may do more harm than good and it will leave you tired and confused.
Now I’ve said that I’m not sure if this post will help or hurt. I hope it may help, but if it doesn’t I hope you find the answers you are looking for elsewhere and maybe some calm and peace of mind.
Best wishes on your hearing loss journey.
Chris
You’re ignoring this member’s posts.