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Looking for people with tinnitus to test a new support tool (early access)

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Hi everyone,

I’ve been living with tinnitus myself and went through a period of pretty intense tinnitus distress.

Like many here, I was told some version of “you’ll have to live with it.”
But over time I found ways to reduce the distress - not the sound itself, but how much it affects daily life (sleep, focus, anxiety).

Since my background is in building SaaS products, I decided to turn that experience into something useful.

I’m currently working on an early prototype of a tinnitus support tool (Sonaura) that combines different approaches - mindfulness, cognitive techniques, sound, and nervous system regulation -into one system.

We’re now looking for a small group of people (preferably US-based) who would be open to testing it and sharing honest feedback.

This is not a paid product, just early testing with real users to see what actually helps.

If you’re interested - please dm - happy to share more details.

Appreciate this community a lot - it helped me more than I expected when I was figuring things out.

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I have had tinnitus for 50 years. My solution found me. I just stopped paying attention to it. Sure if I think about it, it is there. But as long as I am active and don’t think about it I don’t notice it. For me the worse thing I could do is have a tinnitus program in my aids or give my tinnitus any of my time.

I’m with cvkemp on this I also use distraction techniques, if I concentrate on the tinnitus it is there, if I can be busy and active it does not affect me

In reply to @cvkemp

@cvkemp I have had tinnitus for decades. It is very, very loud. But somehow I don’t notice it 97% of the time. Every once and a while I stop and think, MAN that’s loud! Otherwise, it’s like any persistent noise found in kitchen appliances, HVAC systems, or even cicadas in season. I am somehow able to tune it out.

However, it has contributed to my lack of enjoyment of music. Sadly, most music sounds “off” to me.

I had a punctured ear drum as a kid which started the slowly developing hearing loss in that ear. And as I age, the other ear is catching up! (I turn 79 this year.)

I will be 79 this coming Thanksgiving. My tinnitus started Thanksgiving 1975 when I got off a flight in a C141 Air Force cargo jet after a 34 hour flight in the cargo bay without any hearing protection. If I stop to think about my tinnitus it screams at me. Maybe I am lucky but I have never cared about music, or maybe it is because maybe I
have had hearing loss my whole life.

I guess I’m fortunate. Like others here, I have tinnitus but most of the time I am able to just ignore it. I’m not sure how typical that is.

I’d be happy to help your testing, if it makes any sense to do so.

I have tinnitus and believe it started when I started taking plaviz. I constantly have to play music to distract myself from it. I have seen a Ribflavin supplement for it that I am interested in trying to see if the tinnitus will improve! As soon as I see the brand and details again, I will post on here and see if anyone else is up for trying and start a poll on it at that time.

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