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Recently discovered cookie bite hearing loss…

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Hi.

New here and wanting some other opinions/insight as it’s slowly driving me insane!

I’m in my late 20s and have had more noticeable hearing issues over the last 4 years - the main one (I thought) being fluctuating unilateral autophony, I can hear my voice around 3x louder than normal, my own breathing etc etc and have been dismissed again and again. I struggle to hear in busy and loud places, I can hear people talking to me but it genuinely feels like I can’t register what they are actually to me. Having 2 seemingly normal , I ended up having various scans just incase anything sinister happened to be there and thankfully there is nothing causing the hearing problems. Which is obviously a relief and was sent on my way again with a ‘it probably just happens just because…’

As a final resort, and not expecting much to come of it, I went to a private hearing clinic to see if there was any hope anywhere of a bit of relief. Turns out, it seems to be a cookie bite hearing loss and I’m trialling hearing aids to try and provide some sort of relief.

long story short, I feel a bit in denial? As in surely this can’t just have just magically appeared or suddenly the answers to all my questions have finally came about. I know I struggle and I would love nothing more than to find something to help but I feel super sceptical? I hope that makes sense.

Thanks in advance!

5 people in this conversation3 min readJump to latest

Hi! cookie bite hearing loss hear, too. Just found out a couple months ago & I’m 39. I’ve been told this type of loss is generally genetic and I’ve been referred to have testing. Have you researched it much?
I always knew I struggled hearing lower voices/men, but lately it seemed like everyone mumbled & my family made me go get tested.
I’ve had oticon intent 1s for a week now and am amazed at the difference!

Thanks for your reply! I think I’ve maybe researched it too much (lol!)

so pleased to hear you’ve already noticed a difference :slight_smile: I’m a week with mine too, still need a wee bit more tweaking though!

Could you please post your bone conduction and acoustic reflex results? Are you taking any medications of any kind including injectables of any kind?

In reply to @hjs9

It sounded as though it was related to vasculature when you described the symptoms. Just to clarify, you’ve had some scans, what type of scans did you have? Have you seen an Ear Nose and Throat specialist, Otologist or Otolaryngologist/Head & Neck Surgeon?

It’s not so much how they are programmed as how the signal processing chain of the device itself works. Current Widex devices use a 33kHz sampling rate and have <0.5msec delay to the sound in the puresound programme so if you have a more open fitting they can deliver a much more natural sound experience and better preserve interaural timing cues than other devices, something that will matter for hearing in noise if you have a normal hearing ear.

I’m not sure what sampling rate Bernafon are using, but Oticon is ~1/3 of what Widex uses and you hear it in the relatively poor streaming audio quality. Bernafon’s streaming quality is comparable to my ear. Someone with a “mild” degree of loss is likely to notice a substantial difference, whereas greater degrees of loss (>moderate) aren’t necessarily able to perceive it due to much poorer signal encoding by the ear itself.

In reply to @hjs9

It could be. There are ways of testing for that though. Most audiologists haven’t been trained on how to test for these using a diagnostic tympanometer, even when they’ve paid for the test to be included. Ask around and see if your audiologist knows how and can offer the test.

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