Meniere's disease triggers

Thanks Stephen. You do sound like a doctor. And thanks for the inputs. I would like to restate my problem:

My right ear problem is hereditary and I have a loss of about 80% since the past 15 years or so and related possibly to hair cells, whatever that means. The left ear problem emerged about 3 years ago and diagnosed as Meniere’s. On some days the hear loss is very severe and phone calls are difficult to handle with a hearing aid (even with direct like Phonak marvel - recently introduced). There is a heaviness on the left ear as if it is blocked and wants to open. No such feeling on the right side.Tried Otovent for temp relief but does not work.

Incidentally, am very conscious of salt intake and diet. Restricted to sea salt only.

I am a total loss in trying to figure out the triggers. No cure for Meniere’s but any med for temp relief that one knows about?

Thanks again for your valuble inputs

Thanks Wyatt. I am using Phonak V 70 but shifting to the Marvel version. Not much help in case of severe loss on some days. Does Valium give temp relief re hearing or for vertigo? Please do see my reply Stephen - detailing the kind of problems I face.

Once again thanks for your inputs

I have had vertigo problem since my days as a youth. It comes and goes. I cannot lie in my back without being dizzy for days. If I roll over from my back to face down before rising, the dizziness is usually minimal. If I fall asleep sitting up and slide down, I have several days of torment fighting to stay upright.

I have glaucoma so meclazine is a no-no, but in emergencies I have been known to take them. The single thing I have found for me is Guaifenesin. It makes a tremendous difference for me.

As a former Meniers sufferer you have my extreme sympathy as it is a terrible affliction… salt avoidance is your main aim, along with caffeine in any form, process foods are loaded with salt and they should be avoided as much as possible! Avoidance of visual triggers also helps, like large shops or malls with distinctive parallel flooring would and did send me into a vertigo attack… In my case I got mostly severe cluster attacks which lasted approximately 8 years or so and the Meniers eventually burned itself out, the downside was that it took most of my residual hearing with it!!! Good luck in your efforts, Kev👍

If you can, try Zofram (generic - Ondansetron ODT) Developed in Switzerland for cancer patients. I’ve talked to medical people about it and most think is it the "top-of-the-line for nausea caused by vertigo the # symptom of Meniere’s , although some patients have tried both and a few preferred Meclizine.

From what I have read, Meniers’s does not go away. It merely goes into a “rest” and can reappear after several years. My affliction is not so much vertigo intensive as it is hearing loss, at times very severe and even the hearing aids (the best ones available today) do not work! I take stemitel for mild vertigo events.

I do not have glaucoma nor do I suffer from frequent vertigo. My problem is hearing loss which becomes very sever at times. But no triggers found yet

I thought sea salt was better that the normally consumed table salts. Perhaps less sodium. Nevertheless my salt consumption is considerably low now.

Hi, I came here specifically to see if anyone else got nausea and dizziness from lying flat. Mine started about a year ago but I’ve suffered from vertigo episodes for the last 25 or so years, about 1 horrific episode every couple of years. Thank you for confirming this can happen from Meniere’s. It really sucks…

@loriknudsen333 said:

I came here specifically to see if anyone else got nausea and dizziness from lying flat

Every time you lie flat? Does it pass after a minute or so so long as you remaine still? If so it is likely BPPV, which is also common in Meniere’s patients, and can be treated fairly easily by an audiologist or physiotherapist familiar with the treatment.

I have open angle glaucoma. I try to keep my use of meclazine to a minimum. When I have ongoing vertigo I turn to the Guaifenesin and lots of water. I use generic Flonase and OTC antihistamines year-round.

To those that suffer meniere’s,

Have you heard of the procedure called “Perfusion?”

Basically a perfusion is a minor procedure where the ENT/Surgeon fills your middle ear with a steroid cocktail that over the course of a couple of hours soaks through the oval window into the inner ear.

Here at Shea Ear Clinic, the procedure is done every day, and some people have wonderful results in relieving the dizziness/nausea, as well as the big swings or fluctuations in hearing loss. We have people travel here from all over the united states to have this procedure performed, and find relief from their symptoms.